Hey guys,
I can see there is only one other thread on this forum that mentions anything to do with mumps, and doesnt go into any detail about it.
It was only by fluke that I was talking with my mum and found out that I had mumps as an infant for several weeks. For the last 7 years I have been put around the bend by Family Docs, Urologists and it has felt like everyone else in medicine.
Finally, after mentioning to my current GP about my testosterone levels consistently being the same level, she referred me to an Endocrinologist. I had never heard about them or if I had I must have thought they were some kind of female's doctor.
Anyway from when they were first checked at the age of 16, I have always been around 9.8 nMol/L (282 µg/dl).
So I go see this Endo, and we're having a chat about history etc... and mumps comes up. Apparently it can cause testicular failure, resulting in hypogonadism not showing up until post-pubescence. So I had mumps back in '88 as a 24month old, and my Endo says its likely its the cause as it was uncommon for the checks for inflamed epidiymal orchitis to be performed back then?
So we go and get checks done to rule out hypothyroidism, test results are;
Test. 9.8nMol/L / 282µg/dl [25yo values 20.0- 35.0nMol/L / 575-1000µg/dl]
T4 18.0 pMol/L (10.0-20.0)
FSH 2.3 IU/L (2.0-12.0)
LH 3.3 IU/L (2.0-9.0)
Prolactin 204.0 mIU/L (70.0-300.0)
So he says based on these results, my levels are low (likely) because of previous mentioned mumps. And because of this, there is no point in trying to make my body try and create its own testosterone, because based on my physical development (muscle mass, body hair etc...) I would have had some kind of indication that at some point it 'was' normal.
So a month ago we started the first attempt at treatment, Androderm transdermal patches [2.5mg daily] but abandoned continuing due to the fact that from 1 patch I have burning and aching discomfort and the patch leaves what looks like a burnt branding ring (almost like cattle) from removing the adhesive.
So now he wants to go in the direction of IM injections, going through a 'loading' regime first to get treatment kick-started.
Was going to go with Reandron 1000, 4mg: 2x in each glute 10 weekly. (initially 4mg at 0, 5 and 10 weeks) The cost of this however is not covered by Public Health, so am looking at $350.00 per shot. Not too bad at $35 per week effectively but as a student, would take me that long to save.
Other option for me is Depo Testosterone (100mg/ml 10ml multi-dose vial), fully-funded under public health, so all I pay is less than $5.00 for a script fee, and would have 500mg fortnightly, 250mg in each glute. Then there is the current problem which I learn is that Testosterone is currently under a global shortage, and Sustanon is a multi-estered version that is also unavailable.
So after door-knocking at several pharmacists to see if any had any still in stock, I found one that had 250mg/ml vials (Primoteston) and even though not funded was a lot cheaper than Reandron (appx. $40 per vial) which I can only afford until depo is back in stock next month.
Reason I'm sharing this is because I'm wondering, is there anyone else who is or knows someone who has P.Hypogonadism from Mumps? For me aside from height (I'm 6'1") nothing of the rest of me has developed. Will it complete what development should have happened in my teens etc? My voice is still high, I shave once a week and it's patchy, but no man on either side of my family looks like me. All are MUCH more solidly built, more body hair, even my 20 and 23 year old younger brothers look like men and I'm left looking like all the women in the family and it SUCKS.
and also is there anyone else that has had as messed up a time as I have trying to arrange just minimal Testosterone Replacement Therapy?
and finally, aside from possibly needing Arimidex soon: am I getting possibly the best advice from your collective experience? I have an appointment with him again 11/21 so want to know if there is anything else I should cover?
Cheers guys!
I can see there is only one other thread on this forum that mentions anything to do with mumps, and doesnt go into any detail about it.
It was only by fluke that I was talking with my mum and found out that I had mumps as an infant for several weeks. For the last 7 years I have been put around the bend by Family Docs, Urologists and it has felt like everyone else in medicine.
Finally, after mentioning to my current GP about my testosterone levels consistently being the same level, she referred me to an Endocrinologist. I had never heard about them or if I had I must have thought they were some kind of female's doctor.
Anyway from when they were first checked at the age of 16, I have always been around 9.8 nMol/L (282 µg/dl).
So I go see this Endo, and we're having a chat about history etc... and mumps comes up. Apparently it can cause testicular failure, resulting in hypogonadism not showing up until post-pubescence. So I had mumps back in '88 as a 24month old, and my Endo says its likely its the cause as it was uncommon for the checks for inflamed epidiymal orchitis to be performed back then?
So we go and get checks done to rule out hypothyroidism, test results are;
Test. 9.8nMol/L / 282µg/dl [25yo values 20.0- 35.0nMol/L / 575-1000µg/dl]
T4 18.0 pMol/L (10.0-20.0)
FSH 2.3 IU/L (2.0-12.0)
LH 3.3 IU/L (2.0-9.0)
Prolactin 204.0 mIU/L (70.0-300.0)
So he says based on these results, my levels are low (likely) because of previous mentioned mumps. And because of this, there is no point in trying to make my body try and create its own testosterone, because based on my physical development (muscle mass, body hair etc...) I would have had some kind of indication that at some point it 'was' normal.
So a month ago we started the first attempt at treatment, Androderm transdermal patches [2.5mg daily] but abandoned continuing due to the fact that from 1 patch I have burning and aching discomfort and the patch leaves what looks like a burnt branding ring (almost like cattle) from removing the adhesive.
So now he wants to go in the direction of IM injections, going through a 'loading' regime first to get treatment kick-started.
Was going to go with Reandron 1000, 4mg: 2x in each glute 10 weekly. (initially 4mg at 0, 5 and 10 weeks) The cost of this however is not covered by Public Health, so am looking at $350.00 per shot. Not too bad at $35 per week effectively but as a student, would take me that long to save.
Other option for me is Depo Testosterone (100mg/ml 10ml multi-dose vial), fully-funded under public health, so all I pay is less than $5.00 for a script fee, and would have 500mg fortnightly, 250mg in each glute. Then there is the current problem which I learn is that Testosterone is currently under a global shortage, and Sustanon is a multi-estered version that is also unavailable.
So after door-knocking at several pharmacists to see if any had any still in stock, I found one that had 250mg/ml vials (Primoteston) and even though not funded was a lot cheaper than Reandron (appx. $40 per vial) which I can only afford until depo is back in stock next month.
Reason I'm sharing this is because I'm wondering, is there anyone else who is or knows someone who has P.Hypogonadism from Mumps? For me aside from height (I'm 6'1") nothing of the rest of me has developed. Will it complete what development should have happened in my teens etc? My voice is still high, I shave once a week and it's patchy, but no man on either side of my family looks like me. All are MUCH more solidly built, more body hair, even my 20 and 23 year old younger brothers look like men and I'm left looking like all the women in the family and it SUCKS.
and also is there anyone else that has had as messed up a time as I have trying to arrange just minimal Testosterone Replacement Therapy?
and finally, aside from possibly needing Arimidex soon: am I getting possibly the best advice from your collective experience? I have an appointment with him again 11/21 so want to know if there is anything else I should cover?
Cheers guys!
