Klinefelters, advice for my HRT

vaanwadilion

New member
I’ve been lurking on these forums for a while now and have found the information to be invaluable, but I could really use some personalized advice from your guys’ wealth of knowledge.
Through a mix of doctors and self diagnosis, I’ve discovered I likely have primary hypogonadism due to mosaic klinefelters.

A little of my life history: I was a very overweight between the ages of 13-17. Probably around 5’7” 215 lbs with a bf% in the mid 30s (had gyno since I was about 13 as well). My senior year is when I believe I went through puberty. I began growing facial hair, I went on Atkins and I lost 50 lbs. After that year I began lifting about 5 days a week and put on quite a bit of muscle, but I’ve never been able to lift much weight (the most I’ve ever been able to bench is 200 lbs, which was after months of dedicated training/dieting ). For the next few years my weight would fluctuate pretty drastically (from 180-230), and for me to keep weight off I had to eat around 1600 calories a day and close to zero carbs. The quality of my diet and exercise has been sporadic, 6 months out of an average year both are great, and the other 6 months I don’t really watch what I eat or exercise. It’s been like that for the last five years.

For the last few years I’ve noticed the symptoms common with low testosterone: fatigue, lack of sex drive, no energy, foggy mind, weight fluctuations, etc. I didn’t really know what was wrong with me so my doctor tested my thyroid and it checked out fine, and so he told me it could be something mental. I got married soon thereafter and hadn’t had sex before, and soon discovered that I couldn’t perform. I could go once a day, and my dick was pretty soft. I’d joke with my wife to just tuck it in there, and I’d thrust. I met my wife in January of 09 and I weighed 190 and was in the best shape of my life, and by the end of our honeymoon in August 09 (quick I know) I was 217; that probably exasperated my condition. I tried to lose the weight but had a very hard time even with the very strict diet and exercise I had used to lose the weight before.

In April 2010 I had had enough, and after doing some research I had a good idea of what my problem was. My doctor checked my total serum and free test as well as my prolactin. My serum T was 588 but my free was close to zero. I had slightly elevated prolactin. From April until this past October I was bounced from my general doctor to an urologist to two different endocrinologists, having to wait months between each visit. I was finally put on 5g of Androgel, which didn’t work, and tried 10g which seemed to help with erections but little else. I had an MRI done of my brain which came back fine and have had four or five bloodtests. My average total T on the subsequent tests was about 300, free is always well below normal, my prolactin has been normal along with everything else (FSH, LH, E2, SGBH). I had a semen analysis done and it came back showing that I’m sterile.

My doctor wanted me to get a chromosome analysis, which would cost me somewhere between 600-800 dollars, which I can’t afford, to confirm the klinefelters. At this point, I just wanted something to treat my symptoms, but my doctor told me she wouldn’t prescribe me injectables. I’m 23 and both my wife and I are students. We live in the most conservative area of the country, which doesn’t help in getting properly treated. We’re on a very strict budget and I have insurance through my college that doesn’t cover anything related to hormones or infertility. To this point, I’d covered most of this care through student loans.

I could no longer afford to go to a new doctor who would make me pay to run new blood tests, so I had an uncle hook me up with his international line of Test Cyp. I took 200mg once per week starting the second week of this past November. I noticed improvement in sexual function (still no morning wood) but not much else. Thinking I may have got an underdosed or even fake product, I tried doubling my intake this past week. As of right now, my dick is not functioning and I have pretty sore nipples. I currently weigh 250 lbs with probably a little over 30%bf, pretty damn chubby. With this kind of fat on my body, it seems I probably should been taking an Aromatase inhibitor (AI) and started at a lower dose of test.

I’m not really sure what to do next. What should I take, how much? Do I need to try to lose weight first? I would appreciate any advice you guys can offer on the subject or anything else you’d recommend me do as far as my treatment, with my budgetary concerns in mind. I apologize this is so lengthy and hope I’m not breaking any rules or committing noobie mistakes. I may upload pictures of some of my major physical changes later. Thanks.
 
Call Chip and get the blood test done. Once he sees where SHBG is, the doctor Chip works with will know what to give you to drop it. :) How can he say you have Klinefelters when he hasn't even verified your chromosomes yet? That is kind of nuts. If your free T is in the gutter, your SHBG is probably through the roof which means massive estrogen stress. I myself got on the shot and my shbg was still high and I needed to add another compound to feel normal again. The point is, regular doctors and even most endocrinologists know nothing of this nor do they care. Spend less money and get the job done right with Chip. He is far cheaper than any other route and I'm not even sure you can get the proper treatment any other way. He has dozens of living testimonials on this forum to how he has turned men's lives around. Your problem isn't that hard to solve, but getting the right treatment will be nearly impossible otherwise. I know because I tried. As long as estrogen is high and SHBG is high you won't get morning wood no matter how much testosterone you take.
 
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CJ, I think he is saying that the doctor is suggesting he may have Klinefelter's based on the sperm count and would like a chromosone analysis to confirm.

I was under the impression that people with klinefelter's were on the taller side and relatively thin? So senior year is the first year you went through puberty? You began growing pubic hair and under arm hair and all that the same year?
 
Call Chip and get the blood test done. Once he sees where SHBG is, the doctor Chip works with will know what to give you to drop it. :) How can he say you have Klinefelters when he hasn't even verified your chromosomes yet? That is kind of nuts. If your free T is in the gutter, your SHBG is probably through the roof which means massive estrogen stress. I myself got on the shot and my shbg was still high and I needed to add another compound to feel normal again. The point is, regular doctors and even most endocrinologists know nothing of this nor do they care. Spend less money and get the job done right with Chip. He is far cheaper than any other route and I'm not even sure you can get the proper treatment any other way. He has dozens of living testimonials on this forum to how he has turned men's lives around. Your problem isn't that hard to solve, but getting the right treatment will be nearly impossible otherwise. I know because I tried. As long as estrogen is high and SHBG is high you won't get morning wood no matter how much testosterone you take.

I've had my SHBG checked and they've always fell within normal range, so I'm not sure that's the issue.

CJ, I think he is saying that the doctor is suggesting he may have Klinefelter's based on the sperm count and would like a chromosone analysis to confirm.

I was under the impression that people with klinefelter's were on the taller side and relatively thin? So senior year is the first year you went through puberty? You began growing pubic hair and under arm hair and all that the same year?

That's why I'm pretty sure I'm mosaic rather than just full blown Klinefelter's. I exhibit some of the signs, but not all. I have wide hips and a bit longer legs and a couple other things.

I began growing light pubic hair at around 15, which was the same age I was able to masturbate.
 
Normal range for SHBG can be as high as say 44. "Normal" means next to nothing. You definitely want it under 20.
 
I stopped producing testosterone by the age 25. They have no diagnosis for me. They can't tell me why, so I have been on HRT for about 10 years. Recently I have been having difficulties with achieving climax. Most times it is a chore just to get it up. It used to be just thinking about sex with my wife or watching porn would do it, but not anymore.
 
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