Story Of My Life! - help!

Vigilante

New member
Hey guys,

As many know I started testosterone replacement therapy (TRT) a few months back initially on gels and more recently on Nebido 1000 mg injections.

4.5 weeks after my 1st injection I asked for a blood test due to feeling symptoms, got told by dr in that appointment my symptoms are pyschological. the test came back as 8.7 nmol - scale 9.0-29.0.

Due to it being xmas period I could not get back in to see a Dr for another 3 weeks after that and by that time I was extremely tired/fatigued. I was told I could have another Injection now, while he arranged an appointment for me to see an endo.

So I had the 2nd shot of Nebido on 9/01/2012 - 10 days ago.

Initially I felt like I was getting more awake as each day passed for a period of about 3-4 days, at the same time other symptoms were also improving including sexual symptoms I get like premature ejaculation/no morning wood. Then nothing I havent felt good now for the last few days, back to feeling tired/dizzy/drunk/less errections/havent felt like having sex in days/strength disappeared quickly after 2 sets at the gym.

Brings me to today, I got myself out of bed to call the Drs at 8am - or I wouldnt have got in to see anyone.
I picked the Dr who said I could get another Injection only 2 weeks ago who on that occasion had said my level was low, while also openly admiting he didnt know much about the subject.

so I walked up to this appointment which was 9:50am like a round trip of 6 miles there and back. Sat in the waiting room until 10:25 - 35 mins after my appointment was due then I got the call...

I started to explain that I wasnt feeling great and about my symptoms....the Dr answered with he dont think its testosterone related..."my symptome are due to anxiety/stress" "I have plenty of Testosterone in my body" "my levels were within range before" "Me feeling better upon starting a treatment is a placebo effect" I asked him directly for a blood test for Total Testosterone..."blood tests cost money" he refused and told me to wait until I see this Endo - which is 9 weeks time.

Im here thinking did the Dr get a personality transplant in the last 2 weeks, he seemed to totally contradict everything he said last time while also losing his bed side manner...

To be honest I dunno if I should laugh or cry or get angry.

Seems he is quite willing to inject me with 1000mg but not even test to see if it actually works just test me around 10 weeks or stick me with another without any test to see where my levels are...
 
Well I can see any from this surgery or I could move to another surgery.

To be honest I have seen most here at my current surgery at least 3 doctors refused to test or treat me for Hypogonadism wilst having constant levels between 8.1-10.4 (9.0-29.0) plus symptoms.

Maybe it is the money issue or maybe its bigger than that and they generally dont have any education on the subject.

The Doc who actually started me on treatments I have been unable to get appointments to see lately but I do have one booked in for next week but again he dont really have any experience in this problem he does have more bedside manner however so maybe he will blood test for me.

Its just a shock really when the doc i saw today totally contradicted himself from only 2 weeks ago, whilst almost mocking me saying all my symptoms are from anxiety/stress including sexual symptoms.

Its like fighting some kind of war just to get treatment for a condition that they actually influenced in the first place (op for cryptorchidism).

9 weeks probably will be like hell, after 4.5 I was lower than when I started with the first injection by 9 I might just be a walking zombie or unable to get outta bed who knows. Im actually considering letting it get that bad to prove a point to the endo if anything....

Im not even confident the nurse can inject it properly either both times now she has finished injecting it within 10 seconds when the information leaflet says for slow deep muscle injection over 2 mins.

If I can get on Enan from the endo in March I will or else I would seriously consider buying Illegally and self injecting.

running low on options really :(
 
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Im so pissed off, that I have decided to contact ICAS over here to get advice on making complaints vs my doctors.

Surely pumping someone with 1000mg testosterone then refusing to blood test is negligence...
 
Sorry to here you man. Hope you find a good doctor.
I also find that most docs try to avoid putting people on testosterone replacement therapy (TRT) as much they can.
 
If it were me, I would find my balls, call him and stress to him how bad you feel. Tell him to give more t, switch t, give blood work, or come up with an alternate solution. If he then refuses to do anything, then mention fraud. In otherwords, be sweet and firm.
 
If it were me, I would find my balls, call him and stress to him how bad you feel. Tell him to give more t, switch t, give blood work, or come up with an alternate solution. If he then refuses to do anything, then mention fraud. In otherwords, be sweet and firm.

My balls have got smaller so ill go check! lol, yeah im not taking it lying down thats for certain, got the initial dr who put on treatments calling me back in the next few hours.

what do you mean by mention fraud?
 
Typing on phone. I meant ICAS. This is my day after my fifth t shot, so my t is soaring right now, and feel very confident and strong. I firmly believe you should be very nice, but firm. Don't accept anything less than some kind of solution/resolution. If whatever they tell you is not acceptable, tell them it's not acceptable on the spot. I would really man up and put them on the spot if need be. Ask this if you have too. "how can you call this treatment when you give me a shot, then not listen to what I'm telling you?". Don't let on that you know anything. Just tell him these shots aren't working on you, what are other options?

Keep us posted, good luck
 
Well didnt go as planned either, I talked open and honest over the phone only to repeatable get the answer "there is no point testing at this time" "it wont tell them anything new since I have had lots of blood tests" Iv put them on the spot over and over. If I would have carried on its basically an argument/slanging match.

He agreed to retest me half way through treatment which is in 3 weeks time.

It basically is negligence.

Im going to look into getting a private hormone panel done somewhere, while talking to ICAS for advice.
 
Little update:

Talked to my Doc in person yesterday, again he refused to blood test but on the grounds that there is no point as he does believe that my levels will be low based on symptoms and other recent tests.

The only thing he wants to do at present is try to bring foreward my Endo appointment, he doesnt want to give me more Testosterone "because he dont know what my body is doing with it"

So ya I might well have to crash.
 
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