MadLuke
New member
The title pretty much explains it all, but here goes anyway. Background:
I have an unusual seizure condition, not epilepsy, that causes violent, persistent Tonic seizures in various parts of my body. I have had these since I was 8, accompanied by a constant headache that feels like a balloon is inflating my head. These seizures have been severe enough to cause muscle tears and lacerations, often serious enough to warrant surgery to combat internal bleeding. I've had 18 such surgeries over 17 years. Doctors thought it was epilepsy, but it can't be induced with strobes or other common triggers, and most epilepsy drugs either make things worse or do nothing at all. The seizures also commonly last more than a minute, with the weaker ones lasting longer than ones that are stronger. I also noticed that the stronger seizures happened in lesser developed muscle groups, along with happening in the most use muscle groups. The majority of them happen in my legs and lower back, and I've tried a few ways to tackle that as well, but its been years since I've devoted much time to it, until now.
I dealt with doctors messing around for over a decade, and often making things much worse, before I took matters into my own hands. I tried just about every mineral and natural remedy, putting myself through hell for a while, until I struck upon a balance. Magnesium is the key, and high dosages combat it effectively. I went from a seizure a week to 8-10 weeks between seizures, often longer. Compared to one of the drugs they put me on, which created one or two a DAY, and kept me in and out of the hospital for 6 months, this is fairly effective at helping things.
I had one such seizure around 11am on Saturday. It started with a sudden blurriness of vision, following by colors smearing. After a few seconds, it hit, like a knife sliding into my chest and cutting down. This one started up near my left clavicle, and extended down towards my lower rib cage, finally settling down at the bottom of my pecks, left of the lower part of my sternum. It sat there, pulling at the muscle, for close to 15 minutes. Other muscles spammed as well, along with my equilibrium going nuts. I was at the grocery store, and had to use my shopping cart to stay standing, while locking my knees. My breathing was painful, but unrestricted, and my vision was unaffected after the initial aura.
A little old lady shopping near me was kinda freaked out when all this started, and she said my face was bright red for several minutes. This was a minor seizure, one that has just left a bruise across my chest, but no further damage.
This isn't unusual, and minor seizures are a good thing, stronger ones land me in the hospital. But the issue I'd like to tackle now is the sudden, and extreme, energy loss that follows it. I barely made it home from the store(which is across the street from my apt) before passing out on the couch. I woke up after about an hour, put my groceries away, and tried to do a few chores, but finally went to be around 3PM, and slept until 8AM Sunday morning.
Mega suggested it may be due to glycogen depletion, but could half a dozen muscles really have that big of an impact on my entire body's energy level? This after effect happens no matter where the seizure strikes, or its severity. I remember reading that muscle glycogen doesn't transfer from muscle to muscle, is this true? Also, anyone had any ideas what else could be the cause of my energy loss?
I have an unusual seizure condition, not epilepsy, that causes violent, persistent Tonic seizures in various parts of my body. I have had these since I was 8, accompanied by a constant headache that feels like a balloon is inflating my head. These seizures have been severe enough to cause muscle tears and lacerations, often serious enough to warrant surgery to combat internal bleeding. I've had 18 such surgeries over 17 years. Doctors thought it was epilepsy, but it can't be induced with strobes or other common triggers, and most epilepsy drugs either make things worse or do nothing at all. The seizures also commonly last more than a minute, with the weaker ones lasting longer than ones that are stronger. I also noticed that the stronger seizures happened in lesser developed muscle groups, along with happening in the most use muscle groups. The majority of them happen in my legs and lower back, and I've tried a few ways to tackle that as well, but its been years since I've devoted much time to it, until now.
I dealt with doctors messing around for over a decade, and often making things much worse, before I took matters into my own hands. I tried just about every mineral and natural remedy, putting myself through hell for a while, until I struck upon a balance. Magnesium is the key, and high dosages combat it effectively. I went from a seizure a week to 8-10 weeks between seizures, often longer. Compared to one of the drugs they put me on, which created one or two a DAY, and kept me in and out of the hospital for 6 months, this is fairly effective at helping things.
I had one such seizure around 11am on Saturday. It started with a sudden blurriness of vision, following by colors smearing. After a few seconds, it hit, like a knife sliding into my chest and cutting down. This one started up near my left clavicle, and extended down towards my lower rib cage, finally settling down at the bottom of my pecks, left of the lower part of my sternum. It sat there, pulling at the muscle, for close to 15 minutes. Other muscles spammed as well, along with my equilibrium going nuts. I was at the grocery store, and had to use my shopping cart to stay standing, while locking my knees. My breathing was painful, but unrestricted, and my vision was unaffected after the initial aura.
A little old lady shopping near me was kinda freaked out when all this started, and she said my face was bright red for several minutes. This was a minor seizure, one that has just left a bruise across my chest, but no further damage.
This isn't unusual, and minor seizures are a good thing, stronger ones land me in the hospital. But the issue I'd like to tackle now is the sudden, and extreme, energy loss that follows it. I barely made it home from the store(which is across the street from my apt) before passing out on the couch. I woke up after about an hour, put my groceries away, and tried to do a few chores, but finally went to be around 3PM, and slept until 8AM Sunday morning.
Mega suggested it may be due to glycogen depletion, but could half a dozen muscles really have that big of an impact on my entire body's energy level? This after effect happens no matter where the seizure strikes, or its severity. I remember reading that muscle glycogen doesn't transfer from muscle to muscle, is this true? Also, anyone had any ideas what else could be the cause of my energy loss?
